On December 3, 2014 my baby girl turned one year old! I decorated a pink backdrop with Frozen-themed snowflakes and tissue paper poms, dressed Khloë in a turquoise lace romper, and too...
Timeline of Spinal Muscular Atrophy
Every child diagnosed with Spinal Muscular Atrophy, regardless of type, shows symptoms differently. Khloë was diagnosed with Type 1 at six months of age. Type 1 is considered the most severe fo...
Khloë: 8 months old (37 weeks)
Here we go:
37 weeks (August 19)
At the beginning of the week CCAC sent an Occupational Therapist and Physiotherapist to our home to meet with Khloë. The ladies were very...
What is Spinal Muscular Atrophy?
We knew it was coming; we knew something was wrong. But we did not think it would be quite this devastating.
On June 10th, at 6 months old, our beautiful, happy, silly baby girl...
Germany – Part II
***Continued from previous post.
{November 7 – 10:00 am – Berlin} Another dreary day. It’s cold outside; I’m thankful for my mittens and warm winter coat. Having breakfast at...