August is Spinal Muscular Atrophy Awareness Month. This is the disease that took my daughter’s life, and is taking the lives of innocent babies all over the world, every single day. SMA is like ALS, but in babies. 1 in 6000 babies a year are born with this rare genetic disease. There is NO treatment or cure. 1 in 40 people are carriers of this deadly disease. If two carriers have a baby, they have a 1 in 4 chance of the baby being born with SMA. Currently, SMA is NOT part of the newborn screening process.
Educate yourself by visiting these informative sites:
Donate to CureSMA.