Next weekend we will be heading to Kingston to finalize a burial plot for Khloë. We decided to purchase a family plot. Then the burial will be April 11th.
At the end of this month Jordan and I will be flying to Orlando, Florida! I’m super excited about this trip. His parents wanted to take us on a much-deserved vacation and of course we said yes. Everything is now booked and the countdown is on! We have a surprize for them while we’re there, too!
Tomorrow, my little girl would have been fifteen months old.
SMA is a cruel disease.
A letter to our baby girl on the day of her celebration of life:
January 21, 2015
On the day you entered the world, your Daddy and I became the happiest people on earth. We were given a perfect little girl. We knew we would do anything for you, no matter what. You already had us wrapped around your finger. Watching you grow from a teeny baby into a toddler has been a privilege.
Our favourite part of the day was waking up and going into your room to be greeted by a big smile. You knew that we were there to give you a kiss and bring you out to the living room to play. And did you ever like to play! It didn’t matter that your body was weak; you still found a way to stuff Sharkie in your mouth, toss your Do Not Enter sign on the floor so we had to pick it up over and over again, or play xylophone and strum the guitar with Daddy. The look in your blue eyes whenever you discovered something new was priceless.
You were one lucky girl, let me tell you!
Khloë, you were the strongest little person we knew. You fought a terrible disease every single day, but didn’t let it get you down.
We have so many wonderful memories of you, Sweet Pea: your first laugh, dressing you up for photo shoots, playing peek-a-boo under a blanket, swimming in the tub, camping in Bar Harbor, and the first time you said “a-bah a-bah” which sounded suspiciously like a chicken bawking.
Daddy and I will never forget the light you brought to our lives. Today we celebrate your beautiful life.
Hugs and kisses,
Momma and Dadda
I chose my favourite Hello Kitty picture from each month and made this collage of Khloë:
I love seeing these photos next to one another. Brings back great memories of my girl. 🙂
It is with a heavy heart that I make this post… On January 16th, our sweet girl lost her fight with Spinal Muscular Atrophy.
December 3, 2013 – January 16, 2015
We are heartbroken.
Khloë was hospitalized on January 12th with aspiration pneumonia and a collapsed lung. She passed away from complications from these issues. Her body was too weak. Jordan and I, as well as close friends and family, were with her to the very end.
We love you, Sweet Pea.
I will add missing journal entries when I feel that I am able to.