Ashe: Four years old

On July 6th, my nephew Ashe turned 4 years old. FOUR! I can hardly believe it. We had a small birthday party for him, on the Sunday, at my mom’s cottage. Close friends and family attended. My sister and I made special cupcakes and “Paw Patrol” decorations. These are some of my favourite photos from the day:


Paw Patrol party

Playing a game

Huge smile from Ashe

Sunglasses collage

Happy birthday!

Birthday balloons

Scooter fun

Holding his adopted puppy

Birthday cupcakes

Cupcakes are delicious!

There were sandwiches, cookies, hot dogs, and other goodies for lunch. My sister had a few fun activities for the kids, like “Pin the Badge on Marshall” and decorating dog bones. There was also a little pool to keep cool in and squirt guns! It was a great party and I’m pretty sure that Ashe had a great time!

Second trimester: Weeks 20 – 23

Week 20 (June 15)
I had ordered a bunch of baby clothes from Carters and they arrived this week. I washed everything up and sorted by size and admired the cuteness. You know what’s really annoying about baby clothes? Even among the same brand, the sizes are so wacky. For example, some of the 3 month and 6 month onesies are the exact same size in length… Figure that one out.

I also spent three days painting the nursery! It was a LOT of work but I knew if I didn’t do it myself, it wouldn’t get done. I picked out a gorgeous colour at Canadian Tire in town called Island Aqua. Jordan helped move all the furniture to the very centre of the room and removed all the nails from the walls. After mudding the holes, I taped all the trim, etc. Then I spent two days with the windows wide open while I painted. Once the furniture was moved back into place, I couldn’t believe the transformation of the room! It looks amazing! We are going with a nautical theme and adding in aqua and navy blue accents. I replaced the pink and turquoise fabric drawers with navy and aqua. I’m still in need of curtains and throw rug. I decided to leave Khloë’s name on the wall where it’s always been. Baby boy will have his name on the wall above his crib. It was a LOT of work and I was completely exhausted by the end of each day but it was worth it.

On Thursday I saw Kilmeny, one of my midwives. She said the ultrasound results looked great and gave me a copy. Baby Boy’s heart rate is still in the high 150s, just like his sister. My blood pressure remained low at 88/56. And my total weight gain is 16 lbs!


Weeks 20-21

Week 21 (June 22)
Not much to report for this week in regard to symptoms, other than I think I’m starting to get some Braxton Hicks contractions. Looking at the photo above, I think my belly is popping out more. I have been selling some items and clothes I no longer need in order to make a little extra cash to buy Baby Boy some clothes. I also found the car seat I want to get; my mother-in-law is going to pay for it so I’m just waiting for it to go on sale.

Week 22 (June 29)
Definitely strong Braxton Hicks contractions! I get them quite often. They don’t hurt but can be uncomfortable; it feels like my bladder is being squeezed. After a trip to Walmart on Monday, I starting having some cramps that caused me to curl up on the sofa. I drank a glass of water and laid there for awhile and they went away. I think it’s just because I did a lot of walking around and then carrying all the groceries inside the house. I spent Tuesday at Amanda’s. We used their Silhouette machine to cut out the shape of an anchor and seahorse on 12×12″ scrapbook paper for me to frame in the baby’s room. They look really good in the nursery!

For Canada Day, it rained most of the day. I made chicken noodle soup in the slow cooker and mint chocolate chip cheesecake squares. We didn’t plan on going to any festivities. Holidays are hard without my girl because all I think about is that the previous year we did “this and this” etc with Khloë on a particular holiday. 🙁

We spent the weekend in Kingston with my family. The drive was long and uncomfortable. We stopped for BLTs and a toilet break at the half-way point gas station, but then I dreaded getting back in the car knowing there’s still another 1.5 hours to go. On the Saturday my sister Keesje came over to mom’s house and we made strawberry cupcakes for Ashe’s birthday party. I had already made and defrosted vanilla cupcakes. I whipped the frosting and dyed it blue. We also made decorations in the shapes of dog bones and paw prints; the party’s theme was “Paw Patrol”. That afternoon we all drove down to the cottage. Dinner was hamburgers! Sunday, July 5th was Ashe’s fourth birthday party! I will do a separate post with photos, but it was a beautiful, hot day and he was the perfect little host!


Weeks 22-23

Week 23 (July 6)
On Monday, while still in Kingston, I turned 23 weeks. We had a very long day. After saying goodbye to my mom, Jordan and I headed to Gananoque to Leeder Monuments. We finalized the design for Khloë’s headstone and base and paid for it in full. That’s a weight off our shoulders. It should be completely installed by mid-September. Then we went back to Kingston for some shopping; I had a couple gift cards for Toys R Us to spend. We found a couple outfits, socks, and a navy blue crib sheet with white anchors on it. By the time we got home it was 9 pm.

My sister had sent home with us 5 boxes of my nephew’s clothes, sized 12-18 months. I spent a few days of the week washing, sorting, and folding everything. I also turned 33 on Sunday, July 12th. We went to church in the morning and in the afternoon returned a video card to Staples. I’m definitely thinking of ordering a new computer! Mine is 8 years old and not worth upgrading anymore. On the way home we stopped for Wendy’s and then a hot fudge sundae, yum!

By the end of the week, I was 21 lbs up!

Khloë turns one


Let It Go

On December 3, 2014 my baby girl turned one year old! I decorated a pink backdrop with Frozen-themed snowflakes and tissue paper poms, dressed Khloë in a turquoise lace romper, and took some photos.


Frozen<span class= #1" width="800" height="471" class="alignnone size-full wp-image-4264" srcset="http://kyslota.net/wp-content/uploads/2015/01/172_collage1.jpg 800w, http://kyslota.net/wp-content/uploads/2015/01/172_collage1-300x177.jpg 300w" sizes="(max-width: 800px) 100vw, 800px" />

Frozen<span class= #2" width="800" height="550" class="alignnone size-full wp-image-4265" srcset="http://kyslota.net/wp-content/uploads/2015/01/173_collage2.jpg 800w, http://kyslota.net/wp-content/uploads/2015/01/173_collage2-300x206.jpg 300w" sizes="(max-width: 800px) 100vw, 800px" />

Frozen<span class= #3" width="900" height="619" class="alignnone size-full wp-image-4266" srcset="http://kyslota.net/wp-content/uploads/2015/01/174_collage3.jpg 900w, http://kyslota.net/wp-content/uploads/2015/01/174_collage3-300x206.jpg 300w" sizes="(max-width: 900px) 100vw, 900px" />

Here are some of my favourite pictures from her birthday party:


Birthday girl

Posing with giant Olaf

Food and snacks

Pin the Nose on Olaf

My pal Olaf

Keesje, Ashe, Olaf

My mom and I

Frozen cake pops

Enjoying her cake pop

Cousin collage

Oh Christmas tree

Sisters and cousin

Aunt Keesje with her niece

Khloë: 12 months old (52 weeks)

Here is Khloë’s final Hello Kitty photo!


52 weeks (December 2)

52 weeks (December 2)


She turned 1 year old on Wednesday! How amazing is that? We officially have a toddler! Jordan and I have gone through such a whirlwind these past six months that it is such a relief for Khloë to reach this milestone. We love our baby girl so much and only want her to be healthy and happy… She is always happy and right now she is as healthy as she can be.

We didn’t do anything special on her actual birthday, which was the 3rd, because we have a birthday party planned for the upcoming weekend. Khloë was very junky-sounding for the majority of the day so we spent our time playing with her toys and singing nursery rhymes in between rounds of coughs, chest PT, and suctioning.


Eggs make great toys

On Friday my family arrived. The house instantly became chaotic but it was great to see everyone. We’ve had to cancel trips back home too many times! Khloë was a bit overwhelmed at first, but after a good nap she welcomed all the extra attention. In the afternoon, Michelle and two of her children came over for a quick visit since she wouldn’t be able to make it to the party. She made beautiful Frozen-themed cake pops! The evening was spent working on decorations and goodie bags.

The birthday party guests on Saturday consisted of my mom, two sisters and their significant others, my nephew, cousin, Ryan & Stacey and their girls. We had invited two other families but both had to cancel due to illness. We had so much food since we had planned for more people. Khloë ended up taking a nap during the majority of her party and while she was sleeping we all played Pin the Nose on Olaf. Ashe loved being reunited with his cousin and it was so cute watching him play with her.


Ashe playing with his cousin

Sweetness

Ashe loves his cousin!

Recently I’ve had to pack up a box of Khloë’s clothes. She currently wears 12-18 month or 18 month shirts, pants, and dresses. We measured her at home and she was 30 inches long! Diapers I have switched to size 4 Pampers.

Khloë: 11 months old (51 weeks)

My girl’s last week as an eleven month old:


51 weeks (November 25)

51 weeks (November 25)


She couldn’t manage to sit up without coughing, so we did our photo shoot laying down this week. I have been dying to have her wear those sparkly leopard print pants!

The biggest thing this week was the increase in the amount of times Khloë needed saliva/mucous suctioned out of her mouth. This is definitely a progression of her disease; she will slowly lose the ability to swallow. She also coughed quite a bit on her own, which in itself is pretty good as they were strong coughs, but they sounded phlegmy. However, she wasn’t sick.

I used the week to prepare decorations for her upcoming birthday party. I’m also working on decorating the backdrop for her birthday photo shoot. The blue lace romper I ordered from OnceUponATimeTuTus on Etsy arrived!


Monkey

On Thursday the Occupational Therapist from CCAC came to take Khloë’s measurements. We have started the process to get her a medical stroller because she is quickly growing out of her current “baby” stroller. The one we use now allows her to lay flat, but her feet are touching the end so we need something different. Plus our stroller is not meant to hold heavy medical equipment. We will be working with a vendor in Ottawa who will bring us sample strollers to try out. ADP and ACSD should cover the cost of the stroller. The application, though, could take 4-5 months for approval. While we wait for that, I hope the vendor will let us borrow the stroller we eventually pick out until payment comes through.

Also, we received the grant money for enteral feeding supplies from ADP. Our application was submitted in August and was just approved–that’s how long this stuff takes! A large portion of the checque will go toward purchasing a Kangaroo Joey feeding pump and the rest is meant for supplies (syringes, Mic-key buttons, extension sets, feeding bags, etc). I totalled up our invoices and, since September, we have already spent $500 on enteral feeding stuff for Khloë.

My cousins Delia and Andra, and four of Andra’s kids, came to the house to visit on Friday. Little Eleanor played with Khloë the whole time!


Strumming the guitar

Daddy showing her the harmonica

After they left we packed up and drove to Pembroke to see Christkindlmarkt at the Germania Club. Inside there were many vendors selling European-style Christmas items. We pushed Khloë around in the stroller, even though it was pretty packed and hard to navigate. When we first arrived, we parked the stroller near the back in the quietest spot we could find and set up her feed. The lady whose stall we had stopped near came out to talk to Khloë while I got everything ready. She didn’t even bat an eye when I pulled up Khloë’s shirt to attach the extension set to her Mic-key button. She was very friendly and said we had found the perfect spot to get our baby’s milk ready! When we were leaving I saw there was no line to see Santa, so Khloë and I got our picture taken.


Khloë and Santa Claus

We don’t do the Santa Claus thing, but I thought we should at least get a picture. That was the best one Daddy could get.