Week 8 (March 23)
Not much to report for symptoms. I’ve been able to eat food without feeling queasy afterward, but I still vomit after taking my prenatal vitamin. On Wednesday I went to my Prenatal Nutrition group at FEN. All the same girls are there.
At the end of the week I emailed Claire Goldsmith, our genetic counselor from CHEO. She wants us to have a video conference when Jordan and I return from Florida to discuss having the new baby tested for SMA. I’m interested to know if cord blood can be used or if it has to be a blood draw.
Week 9 (March 30)
Week 10 (April 6)
Florida and Kingston!
Week 11 (April 13)
During the past couple weeks, on our trip, I would feel queasy in between meals again. I had to keep snacking. Restaurant food didn’t always agree with me. But I still managed to have a good time. The most exhausting part of the trip were the full days spent at EPCOT and Magic Kingdom. When we returned to Ottawa, we drove to Kingston and stayed at my mom’s to prepare for Khloë’s burial on April 11th. That day the weather was beautiful (after a rainstorm the previous day). Afterward, we held a small reception for friends and family at the church we attend in Kingston.
April 16th marks three months that my baby girl has been in Heaven. It is the strangest feeling to be a mother but to not have a child in my arms. Even with the new baby, there will always be that blank space where Khloë should be. She is in my heart.
I also had a midwife appointment mid-week. Suki will be sending Claire a referral for the genetics appointment. My blood pressure is still low at 90/60, but Suki wasn’t concerned since it seems to go up a little at each visit. She also found the baby’s heartbeat: 160 bpm.
Next weekend we will be heading to Kingston to finalize a burial plot for Khloë. We decided to purchase a family plot. Then the burial will be April 11th.
At the end of this month Jordan and I will be flying to Orlando, Florida! I’m super excited about this trip. His parents wanted to take us on a much-deserved vacation and of course we said yes. Everything is now booked and the countdown is on! We have a surprize for them while we’re there, too!
Back in the beginning of July, my mom hosted a big party at the cottage. The party was to celebrate three things: my nephew Ashe’s 3rd birthday, Khloë’s 7 month milestone, and my brother Mark’s visit from Newfoundland.
Jordan, Khloë, and I spent a couple extra days before the party hanging out at the cottage. We slept in the guest cottage–the first time I’d slept in there in about five years!–and enjoyed the beautiful weather and laid-back atmosphere. The party came about three weeks after Khloë’s heart-wrenching diagnosis, so it was wonderful to get away for a mini-vacation.
Happy 3rd Birthday, Ashe!
All our friends and family came out on July 5th to celebrate with us! There was plenty of great food and of course lots of baked goodies courtesy of me. 😉 I even made Khloë a special chocolate pudding, which I think she enjoyed.
Keesje and I used last year’s “Thomas the Tank Engine” decorations and added in some Disney Princess bits n’ pieces for a girly touch! There were lots of outdoor toys for the kids, including a water table. Plus swimming and paddle-boating!
What a great party! I am so happy that everyone had a great time. Let’s do it again next summer!
Baby Girl turned 8 months at the very end of the “week” but I considered her 7 months for the majority of the week. This one was taken at Nan & Papa’s home in New Brunswick with Travel Hello Kitty!
34 weeks (July 29)
Her Nan & Papa brought that onesie back from San Fransisco!
Still in New Brunswick visiting with family. There are so many family members who need to meet our little girl. Khloë saw her Uncle Luke again and met Jordan’s oldest sister and her two kids. Her Great-Nan & Great-Papa gave her so much attention! They pray for her every morning and night. She also met Great-Grammy, Jordan’s godparents, two of Jordan’s friends, my co-worker Lori who was posted to Gagetown, and various aunts and uncles.
We had to use the suction machine on July 30th and 31st to clear out Khloë’s junky-sounding lungs. We aren’t sure if we’re doing it right. I was afraid she was getting sick, but so far that’s not the case. She still wakes every two to three hours at night rather than the four to six she would do at home in her crib. Most of the time I think it’s gas pain and wanting comfort, rather than hunger. Due to SMA, she needs to be fed every four to six hours anyway.
Our lucky little girl was spoiled with two 8 month birthday parties, too.
August is Spinal Muscular Atrophy Awareness Month!
She’s getting close to hitting the 8 month mark! This week’s photo was taken in Bar Harbor, Maine with Travel Hello Kitty. 😉
33 weeks (July 22)
We arrived in Bar Harbor on Sunday, July 20th. The weather was perfect except for one cold, rainy day. Khloë loved her new stroller and fell asleep in it every time we would go out. I’m so glad we purchased it! Unfortunately, Baby Girl didn’t sleep very well. We spent the week in Jordan’s parents’ new trailer, which meant Khloë had to sleep in her pack and play in the living area. This arrangement made it difficult for her to catch much-needed zzzzz’s. Other than the sleep issue, she adjusted well to sight-seeing during the day.
Jordan’s parents absolutely adore their granddaughter! His mom, Charlene, spent the first 3 weeks of Khloë’s life with us, but his dad hadn’t met her yet. She was a little hesitant at first, but she warmed right up to Nan & Papa!
She continues to breastfeed very well and eats a few bites of pureed food with meals.
On July 27th we left the campground and drove into New Brunswick!